Friday, February 02, 2007

2/2/07 Update

Wellllllllllllllllll, finally tracked Susan down --- Lee went to her appointment on the 31st, and the wunderkind at the ENT group is being less than forthcoming.

Here's what Susan told me: Lee has an appointment to see him again in 3 weeks. He doesn't think that surgery is an option at this point. (AT THIS POINT.) Looks like it'll be radiation to try and shrink the tumor, see if that gives her any relief from the pressure on her brain and her nerve branches. She's been given some kind of medication(s) to help with the headaches and the dizziness and the leg pain. Hopefully, by the next appointment, they'll be able to tell Susan & Lee where they're going from there.

The brain tumor is, as we've known all along, intertwined with the tumor on her face. One of those lovely little bonuses of neurofibromatosis. Because of the strength of the connection between the two, the ENT guy doesn't think that surgery can extract the brain tumor without causing debillitating damage to the rest of her head and possibly her entire central nervous system.


That's what I know as of now.

Not altogether heartening.

I wish that I could give y'all better news. If only we could have gotten to this point SOONER.

I don't mean "this point" in terms of Lee's prognosis as of now, I mean this point as in THIS DOCTOR, or any doctor who would've at least TAKEN A SHOT AT IT. We had so many great offers of help from U of Alabama at Birmingham and Tulane --- and never got to accept them. We've had so many wonderful people sending us information and leads and help --- and now it seems like it was all for naught. If there is any justice left in the universe, the radiation will be the miracle pill.

If you believe in miracles.